About site: Conditions and Diseases/Neurological Disorders/Movement Disorders/Dystonia - Care4Dystonia
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  About site: http://www.care4dystonia.org

Title: Conditions and Diseases/Neurological Disorders/Movement Disorders/Dystonia - Care4Dystonia Information about dystonia, treatment, toxin use, medical care and alternative therapies. Newsletter.
Dopa_Responsive_Dystonia_Central Information and support for people and families afflicted with this disorder, GTP Cyclohydrolase Deficiency and Segawa's Dystonia.

Dystonia,_Inc Information about spasmodic torticollis and dystonia.

Dystonia_Medical_Research_Foundation Canadian Foundation supporting research, awareness and support related to dystonia.

The_Dystonia_Society_(UK) UK charity providing information and support for people with dystonia.

Dystonias Information page compiled by NINDS, the National Institute of Neurological Disorders and Stroke.

The_Family_Village_-_Dystonia Information, contacts, chat rooms, links related to dystonia.


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Care4Dystonia HomepageimageimageimageWelcome to Care4Dystonia, Inc. This is our newly updated web site and we hope that you find it of value. We have condensed much of our material into printable pdf files that you can now print out online and read at your leisure. We have updated our links to our newsletter and archived all our issues. Each issue contains a wealth of information and may take some time to download as a few issues are lengthy page-wise. Our Stories of Hope contain new inspiring stories from others diagnosed with dystonia. You are not alone. You can also now Ask Beka directly a question via email. Due the the volume this site has received over the last 11 years, we kindly ask that you provide Beka, Founder of Care4Dystonia, Inc., 5 business days to respond to your questions. We decided on a new fresh look recognizing the need to optimize information into one central location with a global touch as well. Let's get started.Beka, RN, MS, A-NP, Founder We are a tax exempt 501c3 non profit and are listed by the US IRS as such. Have you seen the pictures and wonderful event hosted by the Bachmann-Strauss Dystonia Parkinsons Fd. titled " AN EVENING WITH ACTRESS ANN HATHAWAY " ? Please visit their site and watch the slideshow as funds were raised for BOTH disorders.Please visit www.MakeYourMarkCampaign.com for more information and to learn about the patient advocates leading Make Your Mark: - Dawn Brinkley, 2010 Mrs. North Carolina and an active volunteer, was diagnosed with CD in 2004. - Hallie Neill, a New York opera singer, actress and writer, makes her Mark on the world through creative expression. She has been living with CD since 2007. - Alfred (A.J.) Deguio, a blepharospasm support group coordinator in New Mexico for the past 16 years who was diagnosed with blepharospasm 17 years ago. Need SUPPORT?Listen to Dr. Mehmet Oz, MD discuss dystonia here.Are U at Risk for Dystonia? ( Video ) New Dystonia Movie release from the UK : Copy and paste into your browser http://www.flukie.co.uk/Files/DystoniaFullMovie.wmv NYC Marathon brings in more than $240,000 dollars for the bachmann-Strauss Foundation. Follow them on Facebook and read up on Jake's Cycle Ride. We applaud the BSDPF ! From Barcelona 2011 News : View this link :http://www.dystonia.org.uk/​index.php/about-us/news/​227-5th-international-dystonia-​symposium. How far are we from a cure ? New advancing treatments ? Awareness is rising! Dystonia Health Global MonitorPromote Our Page TooView site map Site Updated 4.Jan.2012. Unique visitors to date in 2009-12 377,541.Bookmarks.cc Facebook Digg it Google Twitter MySpace Reddit Yahoo! My Web del.icio.us Stumbleupon Gmail Windows Live Social Bookmarking Links
 

Information

about

dystonia,

treatment,

toxin

use,

medical

care

and

alternative

therapies.

Newsletter.


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