About site: Conditions and Diseases/Neurological Disorders/Movement Disorders/Dystonia - The Family Village - Dystonia
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Title: Conditions and Diseases/Neurological Disorders/Movement Disorders/Dystonia - The Family Village - Dystonia Information, contacts, chat rooms, links related to dystonia.
IPL_Ready_Reference_Collection_-__Dystonia Dystonia reference.

Living_with_Dystonia_from_Childhood_to_Adulthood Information about dystonia, including personal information and links to dystonia organizations.

Medicine_Net A description of dystonia musculorum deformans.

Movement_Diseases_and_Disorders__Dystonia An article explaining what dystonia musculorum deformans is, the symptoms, causes and treatment. From UCLA Neurosurgery.

Paroxysmal_Choreoathetosis_Disease Information compiled by the National Institute of Neurological Disorders and Stroke (NINDS). Condition, symptoms, treatment, and prognosis.

Spasmodic_Dysphonia_-_Patient_Information Information about the voice disorder spasmodic dysphonia. Includes a listing and review of other sites.


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Dystonia / The Family Village Library Library  C - D

Dystonia

* Who to Contact * Where to Go to Chat with Others * Learn More About It * Web Sites * Search Google for "Dystonia" Who to Contact Dystonia Medical Research Foundation One E Wacker Drive, Suite 2430 Chicago, IL USA 60601-1905 312-755-0198 (phone) 800-361-8061 (In Canada) 312-803-0138 (fax) E-mail: dystonia@dystonia-foundation.org Web: http://www.dystonia-foundation.org Related Diagnosis: Idiopathic Torsion Dystonia (ITD), Generalized Dystonia, Segawa's Dystonia, X-Linked Dystonia, Blepharospasm, Spasmodic Torticollis, Oromandibular dystonia (Meige's syndrome) Spasmodic dysphonia. Dystonia Medical Research Foundation (DMRF) has a mission to advance research into the cause of and cure for dystonia; to create physician and public awareness; and to sponsor patient support groups. The Foundation serves people with dystonia, and their friends and family. They have local support groups, and will provide materials or assistance in starting a local group. Call to locate the group nearest you. They also have a parents' directory. Dystonia Medical Research Foundation publishes Dystonia Dialogue four times a year at no cost to members. The DMRF offers several pamphlets about various types of dystonia, including: Spasmic Torticollis, Spasmodic Dysphonia, and Blepharospasm, and "8-18", A Guidebook for Young People with Dystonia, and a Guidebook for Families: Special Education Rights. DMRF has books and videos for distribution and you can also request a reading list of articles or books pertaining to dystonia. The organization maintains a physician referral list of doctors who treat dystonia. They host an annual conference; contact DMRF for more information. Where to Go to Chat with Others Dystonia This list is for all that are interested in sharing information about movement disorders mainly Dystonia and sharing/caring about each other. DBS for Dystonia This group is designed for people with Dystonia, a neuromuscular movement disorder, who have had the Activa Deep Brain Stimulation Implant Surgery, or who are thinking about having it and are looking for more information. Learn More About It Dystonia: Your Questions Answered Dystonias: Fact Sheet From the National Institute of Neurological Disorders and Stroke What is Dystonia? MedlinePlus: Dystonia Dystonia - MayoClinic.com Dystonia, Tardive from eMedicine Web Sites Dystonia Dialogue The Dystonia Society—United Kingdom We MOVE - Dystonia, Cervical Dystonia, and Pediatric Forms of Dystonia Care4Dystonia Back to [C - D] [Family Village Home] [Library] [Coffee Shop] [Hospital] [Shopping Mall] [Post Office] [Bookstore] [Research] [Living with Disability] [Disability Culture] [School] [Legal Issues] [Recreation & Leisure] [Family Resources] [Information] Last Updated July 6, 2007 by familyvillage@waisman.wisc.edu Document Source: http://www.familyvillage.wisc.edu/lib_dyst.htm _uacct = "UA-487414-1"; urchinTracker();
 

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